My Unplanned Sabbatical

A journey with follicular lymphoma

Archive for the month “April, 2012”

A Wednesday

Another great post by the insider. “Brady Bunch” I don’t think so! Our kids are no where that compliant and a heap noisier.

I am feeling really good and strong at the moment and with only 6 days to the next nuking it’s a nice feeling.  I always get a little anxious when I am this close to the next cycle as I know just how CRAP the following weeks are. Anyway, nothing I can do about that.

I put on a suit and went into work today. Suit still fits which is good and I felt almost normal.

Had some very ordinary news to digest, process and deliver to the team which was like a real big kick in the guts, but did that and now feel a little better having shared it. Time to look forward on some matters. Stay positive as the alternative delivers nothing.

Had a good meeting with another client so that balanced the day somewhat.

I have started to exercise again and I have a program to build me up before I fall down again.

Such a wild ride.

Conflicted by the insider

I suppose whilst I think I am still youthful, intouch and have an endless road of life to journey my connection to technology see’s me otherwise.

I am not one to be constantly connected to an iphone nor one to see the computer as a crictial source of communication, hence my infrequent posts. I do have to admit that this blog has allowed me to be somewhat voyeuristic of my own family as I see the photos of smiling children achieving something everyday and family gatherings, so I have to admit I do ponder if the computer pictures are my realitly. Maybe the “Brady bunch” image is glossy and sometimes conflicting to me but there is  a tangible history that allows me to see the many positive moments that fill our day and the blog and technoglogy have given the vehicle, but its Serg’s illness that been the catalyst.

Conflicted is the best way I can describe what Serg’s illness has made me feel. It is a struggle to reconcile the irrational emotions of how somedays its hard to predict what care I can provide to Serg from food ,to noise ,to positive motivation , business/client  debriefs and tough love with that of the rational, that we have a blessed life with healthy children and our only struggle is for our own sanity!

So as the next cycle is about to begin in 6 days I feel conflicted by the uncertainity  of how serg will respond but with the certainity that the treatment is necessary for a positive outcome.

Conflicted? Why does it seem to take illness or suffering for us to reflect and gain positive insights.

Monday night at the G

Another great game of football although this time the outcome was not as good. It’s was a cold late afternoon game with passing rain squalls, some hail, cold winds and some sun shine. Not that unusual for Melbourne.

The family enjoyed the experience even if our team managed to loose by 2 points.

There is always next week. Girls are starting to get into it.

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Such a great day

Easter Sunday and the extended family came together for lunch at our home. We had over 25 seated around the table in a scene reminiscent of the Godfather. Thank god for Ikea as I bought every black folding chair they had to seat us all!

All the family heads were there with our nephews, nieces, husbands, wives, girlfriends, friends and in laws. On reflection it was more like Jersey Shore than the Godfather.

The cousins played and the adults chatted. The insider did a great job pulling it all together but everyone did really put in to make it all happen. Great to see.

Table tennis, basket ball, some putting practice and board games extended into the afternoon. All good stuff.

Lunch lasted almost to dinner and then the insider and I slowly returned the home to some order.

It was the first time in as long as I can remember that we all came together. I think one of the benefits of illness is that it can bring people together.

Early to bed. A bit shattered but happy.

A day in the suburbs

Yesterday was a beautiful autumn day in Melbourne. Unusually hot. We spent the day in our backyard with the Pelusi family. Kids were in the pool most of the day and alternated with tennis, table tennis and basket ball. Adults eating, talking and drinking.

I tried to play a set of tennis and managed to get to 4 games to 3 when I had to retire officially pale!! My doubles partner was also sick of doing most the running around as well. It was a bit ambitious but compared to how I was feeling a week ago it’s a big step up.

I am “detoxing” not taking any drugs anymore. I think that is making me feel better as well. Missing my Avitan! (joke)

I hope you are all enjoying your Easter break.

This is Alessia

It is good to spend more time with dad outside but the bad thing is that he is not feeling well sometimes and that he is sick.

This is Lily

The good thing is I get to see dad more and play table tennis. The bad thing is to see dad sick.

Not a great start today

Woke today and feel really flat, no energy at all. Sun is shining so trying to be up for the girls as they are on school holidays.

Want to roll over into a ball and sleep but can’t see that happening.

Petra out shopping for a range of stuff as we have around 25 for Easter Sunday lunch. Should be great as the extended family has not been all in one room for a long time. I should be fine by then.

This weather is amazing and something to enjoy. Doing my best to stay positive.

Another day

Today was a slight improvement on yesterday although I have struggled this afternoon. I was watching Lily’s cross country training and had terrible hay fever. Never suffer from Hay fever so that’s a first and it has developed further into flu like symptoms. Feeling pretty yuk. Disappointed.

Early to bed.

A day at the beach

Spent the day at Merricks Beach with the family. It was a good day. Weather was mild and day was full of activity. Started with a long walk with the dog along the beach, then a bike ride with the girls followed by a bonfire in the back yard. Marshmallows and “billy tea”, simple pleasures.

It was great to hang with the girls and enjoy the day.

Feeling good but will retire early tonight.

Some tests tomorrow at Monash. I am about mid cycle.

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