The machine that goes ping
The hospital called this afternoon to inform me that the PET scan “machine” had broken down and all scans this Friday have been cancelled.
Not much I can do about that other than accept it with a smile.
I imagine it will be rescheduled for sometime next week. This will mean my appointment with my oncologist and team for this Monday afternoon will need to be deferred and I will have to wait a little longer for my results.
I least I don’t need to fast and can go out for breakfast tomorrow morning. A few more days won’t make any difference.
Petra and I attended a Lymphoma patient and Carer seminar this afternoon. It was really interesting. Leading specialists sharing information on latest treatments etc. I feel much better informed.
Met a couple of people who participated in the same trial as me who are in full remission and loving life! They heard me say a few things to the group today and sort me out after the session to share their experience. Its like a strange club! Instant bonding.
I feel really fortunate and thankful to have been offered a spot on this trial as the specialists not involved with it where saying today that the drugs represent the new standard in treatment. The key is to get it approved in Australia so it can be offered freely to all that need it. Apparently this is still many years away. If you want to access this treatment now you need to travel America at a cost of around $150k. Not good.
My Unplanned Sabbatical 